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CGEMS Data Access Policies
Cancer Genetic Markers of Susceptibility (CGEMS) Data Access
PLEASE NOTE: The CGEMS breast cancer data and the CGEMS pancreatic cancer data are now available for application through dbGaP. The CGEMS prostate cancer data will become available by the end of October, so please check back frequently if you wish to apply for that dataset.
How does one apply?
Click on the log in link and follow the instructions. In order to log in and apply for authorized access to dbGaP studies you must have one of the following accounts:
- eRA Commons (for NIH Extramural principal investigators, grantees, or other extramural investigators). If you do not have a pre-existing account, register here.
- NIH Login (for intramural NIH scientists and staff)
For additional information, see request procedures for Principal Investigators and Signing Officials.
Who can apply?
Researchers from outside of NIH need to be identified as Principal Investigators (PIs) in the eRA Commons system. If you are not a PI, when you log in, the system will advise you to contact your local supervisor to apply on your behalf.
NIH Intramural employees can apply if they are registered in the NIH Intramural Database (NIDB) as a PI, PI-eligible, or Lead Investigator. NIH Administrative and Extramural staff can apply if they meet specified criteria. When NIH employees log in, the system will recognize their status and direct them to obtain any necessary approvals and fill out any required forms. For further information, see NIH Feb. 6, 2008 memo on Requesting Access to Data in the NIH GWAS Data Repository.
Why is access restricted?
NIH is committed to respecting the privacy and intentions of research participants with regard to how data pertaining to their individual information is used. Data access is therefore intended only for scientific investigators pursuing research questions that are consistent with the informed consent agreements provided by individual research participants. Furthermore, investigators provided access will be expected to utilize appropriate data security measures.
Who is an authorized user within the data access request system?
Authorized users include the researchers who may request data sets for specific research uses, the Institutional Signing Officials from the PI's home organization who certify and submit such requests, and the NIH staff who review and process requests (e.g., members of the Data Access Committees).
Do you need further help?
dbGaP also maintains a help desk to assist investigators, institutional signing officials and NIH staff with authorized access management, and answer any questions related to the application process. Contact the help desk with your queries.
Last Updated: October 19, 2009
